Today marks two weeks since my adrenalectomy! Last month I posted my Wish List of things that I hoped the surgery would resolve. Here I’m reposting it, and have crossed off the issues that seem to be gone – many for the first time in 10 years.
heart palpitations or irregular heart beat poorly controlled blood pressure despite multiple meds brain fog or feeling of confusion muscle cramps, tremors or twitches headaches numbness or tingling of extremeties episodes of unexplained sweating/flushing/feeling hot muscle weakness unexplained thirst metallic taste in mouth unexplained feeling of anxiety – okay, truth be told I haven’t eaten in a restaurant yet since I’m still eating child-size portions of food, but I have eaten takeout from Whole Foods just about every day since I’ve been home and have not had any problems water retention after eating salt (up to 7 pounds (!) from a single restaurant meal)
Too soon to tell:
- insulin resistance
- reactive hypoglycemia
- severe, life-disrupting menstrual irregularities
- adult-onset cystic acne
- vision disturbances
- hair loss ( I leave DNA evidence everywhere!)
- dark hair growth on chin and upper lip
In addition, I still have a hepatic hemangioma. This is what happens once one starts getting scanned and poked and prodded – stuff that shouldn’t be growing inside of us gets found. There’s a bit of a link between estrogen and hepatic hemangiomas, which has me a little worried – I’ve already got a history of benign breast cysts that are also thought to be estrogen-driven. And before the surgery, my labs showed abnormally high estrogen and abnormally low progesterone – whether or not this was triggered by the hyperaldosteronism, or is just a normal part of pushing fifty, will sort itself oout in time I suppose. My OBGYN presumes it’s the former; I’ll probably have all this re-tested early next year. My hepatic hemangioma appears to be doing nothing much at all, and I certainly hope it stays that way. Its presence is not quite as disturbing to me as the adrenal tumor was – in the case of the HH, they know it’s benign based on how it looks, and the likelihood of it doing anything that could kill me is pretty small. However, I do wonder if it’s responsible for my inability to process fructose, which is, after all, metabolized in the liver.
Which brings me to my next point – I still can’t eat sugar. Or wheat. Nor, quite frankly, do I want to. But – and this is cause for rejoicing! – I can eat salt! And I can eat in restaurants again! It’s funny, so many of those close to me have reacted with “Now you can eat whatever you want, right?” and then seemed so disappointed when I explained that the salt/restaurants issue was related to the bad adrenal, but the sugar/gluten issues are not. I will always have fructose intolerance, and I will always have gluten intolerance – these are genetic. And lactose will always be questionable (but not damaging in the way that fructose and gluten are) as most people with fructose and/or gluten intolerances are sensitive to it, and I’m no exception. So, nooooooo – I still won’t get excited over cupcakes, or ice cream, or sandwiches. But that’s okay with me! Because I can eat Indian food again! And Thai food! And things that weren’t made in my own kitchen! All of which, really, is way more exciting to me than, say, a cookie. A piece of pie, on the other hand… now that I still pine for from time to time. Or a loaf of challah. Or a big bowl of raspberries. We won’t talk about that.