That’s almost a MONTH, people, since I had my AVS and still – nothing. No results. No decisions being made about, oh, you know, what the rest of my life will be like.
I’m bringing another doctor on board for this ride tomorrow. He’s an endocrinologist at UCLA and known to be very forward-thinking and open-minded. I met him once before, probably 6 or 7 years back, when for a brief moment I had PPO insurance that he accepted. At the time, he agreed with me that my hypertension was probably being caused by something else, and he wanted to do some testing for hypercortisolism/Cushing’s Disease. Right general idea; wrong condition. But pretty likely that hyperaldosteronism would have eventually turned up. But my insurance carrier changed to crappy Blue Cross HMO and I couldn’t see the endo to follow through. There you have it – the American healthcare system in action. If my healthcare coverage was not tied to my employer, I might have had a diagnosis six or seven years ago. But I digress.
What I’m hoping to get out of this visit – besides reassurance that six months plus of untreated hyperaldosteronism is an okay thing – is a central point-person to deal with all of my symptoms. The symptoms everyone seems to care about are the hypertension and the low potassium, because, well, those can kill you. But I’ve got a boat-ton of other symptoms – insulin resistance, hypoglycemia, headaches, a laundry list of digestive woes, and a ton of gynecological stuff. My nephrologist (who is the PA specialist) believes these are all related to the tumor. All well and good, but please, somebody do something about it, okay?
Oh. And did I mention that they also found that I have a hepatic hemangioma? I don’t think I did. It’s 33mm, which to my mind is dangerously close to a giant hepatic hemangioma. Which can cause – ding ding ding! – lots of gastric woes. So I don’t know which one to blame; all I know is I’ve got stuff growing in me that isn’t supposed to be there. Out, please.
Right now, my nephrologist is dealing with the testing stuff, my internist is monitoring my potassium, and my gynecologist doesn’t want to do much because he doesn’t know how it will impact the testing. Everybody blames the low potassium for everything else, but yet nobody is doing anything to deal with the problem.
Meanwhile, I’m expected to hold down a full-time job and function as if everything is normal when it’s anything but. I think in general I’m what could be called a tough cookie, but this? This is definitely testing my boundaries of tough cookieness.
So, hey. If I seem a little out of it, that’s because I am.